She is probably the only one in the Czech Republic with this type, there are only dozens of such children in the whole world. The skin all over Amálka’s body began to crack and cause immense pain right after giving birth. She is extremely sensitive to injury and the disease also limits her movement due … Read more
The mother of two children suffers from ichthyosis of the bullous type. In layman’s terms, this means that her skin is at first glance very rough, impermeable, but at the same time very fragile. “Even a small bump can mean some skin comes off. Painful feet are a reality, when I sometimes cry because I … Read more
Amálka had a difficult start in life. Harlequin ichthyosis is a very rare disease and it is no wonder that at first not even the doctors had any idea what had brought little Amálka into the world. “At first it was not clear what was wrong with her skin, the doctors told us that her … Read more
